Parenting a Child With a Disability and Honest Communication – Do You …
We were ready for a weekend away. A team of moms had gone out of town to do a presentation at a conference. For a few of the ladies, it was the first time away from home and needless to say, they were a bit apprehensive about leaving their family.
For one mom in particular, there was a concern for her son who had Autism and a seizure disorder. He had not had a seizure in over a year so she was confident that he wouldn’t have one while she was away. At the same time, she was eager of the chance that he would have one while she was away. She carried most of the responsibility for matters related to her son’s health and she didn’t want her husband to feel stressed if a seizure did occur.
On the last day of the conference she received a call from home. The worry in her voice told us that something was wrong. Her husband called to let her know that indeed, their son had a grand mal seizure. With patient skill, she guided him on what to do until she returned home the next day.
We could sense her grief and she expressed her feelings of guilt and remorse for not being home when it happened.
A associate of days after our return home I called the family to see how their son was doing. Mom was out with one of her other children so I spoke to dad. He said that his son was slowly feeling better however he was very tired and lethargic.
Then he said, “Can I ask you a question?”.
“Of course”, I responded.
“Do you ever get sad?”, he asked.
“Sad?”, I repeated.
“Yes, do you ever get down or depressed?”, he inquired.
“Well, I feel helpless when my son is ill and I do get sad sometimes, yes.”
“Okay”, he replied, “Because last night I didn’t feel like eating dinner. Everyone was asking me what was wrong but I figured that they should know what was wrong. My eight-year-old son has Autism and he had to have a lot of medication because of a seizure. Now he can’t walk and for a few days, I have to carry him around.”
“To me, that’s very sad”, he explained. “I got up from the table and went to rest in my room and now everyone is upset with me.”
“Did you tell them why you were sad?” I asked.
“No”, he replied. “My wife has enough to worry about and I didn’t want to upset her any further.”
This was a defining moment in our conversation.
“Can I offer you my point of view, a wife’s perspective?” I asked.
“Sure”, he said.
“I know that you want to protect your wife’s feelings by not telling her how you feel because you don’t want to create additional stress for her. “
“That’s right”, he affirmed.
“When we don’t communicate our feelings and we emotionally withdraw, we can truly cause more stress and anxiety for our loved ones. It creates tension and misunderstanding. You may leave them wondering if it was something they said or did that is causing your grief and unhappiness.”
“Oh”, he replied. “I never thought of that.”
“We may feel unprotected and exposed when we have candid conversations, however, it is important to be open and honest so that we can understand each other’s perspective. That is how we learn and prosper in our relationships.”, I offered.
“Otherwise strain and hostility may grow, putting the relationship at risk.”
“That makes sense”, he said. “Thanks.”
Whether we are parents or we are in a supporting role, it is crucial that we communicate openly and honestly. Otherwise tensions mount, misunderstanding occur and unnecessary conflict may arise.
By sharing perspectives, we can strengthen our connection and find a balance that works for everyone, especially for the person you are teaching, caring for or supporting.